Wednesday 19 August 2009

The burden of palliative care

A very thoughtful and interesting post on the PalliMed blog discusses the clinical implications of our recent BMJ paper on Minimally Disruptive Medicine. Even though this hasn't appeared in the hard copy of the journal yet, I've been really pleased by the postive responses not to the paper - not least from some of my own colleagues here in Newcastle. For me, one of the key conceptual issues that has arisen out of this is how to understand the complex relationships between the burden of the lived experience of illness and the procedural and practical burden of treatment. It's quite clear, when we make up an NPT matrix for Minimally Disruptive Medicine that professionals and patients end up doing different kinds of work. That is an empirical as well as a practical problem to pursue later on.

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